Chasing My Cure
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The powerful memoir of a young doctor and former college athlete
diagnosed with a rare disease who spearheaded the search for a
cureand became a champion for a new approach to medical
research.',An extraordinary memoir . . .It belongs with Atul
Gawande's writings and When Breath Becomes Air.'Adam Grant, New
York Times bestselling author of OriginalsDavid Fajgenbaum was a
former Georgetown quarterback nicknamed the Beast in medical
school, where he was also known for his unmatched mental stamina.
But things changed dramatically when he began suffering from
inexplicable fatigue. In a matter of weeks, his organs were failing
and he was read his last rites.Doctors were baffled by his
condition, which they had yet to even diagnose. Floating in and out
of consciousness, Fajgenbaum prayed for the equivalent of a game
day overtime: a second chance.Miraculously, Fajgenbaum survivedonly
to endure repeated near-death relapses from what would eventually
be identified as a form of Castleman disease, an extremely deadly
and rare condition that acts like a cross between cancer and an
autoimmune disorder. When he relapsed while on the only drug in
development and realized that the medical community was unlikely to
make progress in time to save his life, Fajgenbaum turned his
desperate hope for a cure into concrete action: Between
hospitalizations he studied his own charts and tested his own blood
samples, looking for clues that could unlock a new treatment.With
the help of family, friends, and mentors, he also reached out to
other Castleman disease patients and physicians, and eventually
came up with an ambitious plan to crowdsource the most promising
research questions and recruit world-class researchers to tackle
them. Instead of waiting for the scientific stars to align, he
would attempt to align them himself.More than five years later and
now married to his college sweetheart, Fajgenbaum has seen his hard
work pay off: A treatment that he identified has induced a
tentative remission and his novel approach to collaborative
scientific inquiry has become a blueprint for advancing rare
disease research. His incredible story demonstrates the potency of
hope, and what can happen when the forces of determination, love,
family, faith, and serendipity collide.',A page-turning chronicle
of living, nearly dying, and discovering what it really means to be
invincible in hope.'Angela Duckworth, #1New York Timesbestselling
author ofGrit